This blog was originally created to showcase my work that I create for Kenzie, my now 10 year old daughter. I have taken a huge hiatus for few years to focus on my family and we have actually added to it! Kenzie now has a step brother who is 11 and a 1 year old baby sister! She also has a brother or sister on the way, due in December.
Kenzie's little sister Chloe just celebrated her 1st birthday on September 15th, 2020 and 1 week later was diagnosed with AML leukemia. Below is a picture of her at her Moana birthday party, and a picture taken today in the hospital.
If you have been here a while you might be familiar with my niece Emily having leukemia and joining a blog hop that some scrappy friends and I did to raise awareness and get Cards for Emily started. Her link is still on the left side of my blog, but she has since gone into remission and is now 15 years old!!
Chloe has been at the Stanford Childrens Hospital in Palo Alto CA since October 5th. They started her on continuous dialysis due to renal failure and chemo for her cancer right away. Her daddy and I have been by her side since the doctors visit that sent us to the ER and from the ER straight here.
She has made great progress so far! Her kidneys are functioning on their own and she already is off of dialysis and the "long term" line they had put in was actually taken out after only 6 days! She surprised everyone! She was intubated when we first arrived as well. That has since been removed and she is breathing on her own. She still has a long way to go as her left lung is not filling with air properly yet hence the need for the giraffe CPAP machine you see above. It is to help air go into her airway to help pop her lung open fully so she doesn't have to work so hard on her own. That, plus the chemo treatments that she will get for 10 days at a time every 22 days. She will also need lumbar punctures into her spinal cord to treat her spinal fluid with chemo every Friday, and a bone marrow biopsy every 22 days to test where she is at after every chemo treatment.
I am now asking the scrapping and blogging community yet again for your support during this incredibly difficult time. If you could find it in your hearts to create a card or something to put up in her room to make her hospital walls look a little more happy and colorful, we would really appreciate it! We are still currently in the Pediatric Intensive Care Unit until we can get her stable enough to move up to the Oncology Unit where she will be staying as a full time inpatient through the course of her chemo. As of right now, we know that means at least through the holidays and maybe into January-February.
Our address here is:
Chloe Sullivan
Lucile Packard Childrens Hospital at Stanford
725 Welch Rd
Palo Alto, CA 94304
If you could also share our GoFundMe link to your friends and family to help get the word out, we will be needing some additional help with her medical expenses so we can focus on getting her healthy and keeping her comfortable. If donating is not for you, please do not feel obligated at all, we just would like to thank anybody and everybody for the love and support while we help our Chloe Bear fight leukemia and beat cancer's butt!
1 comment:
What a lovely post you have an adorable family xx
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